Books > The Patient's Guide to Neurosarcoidosis

This book is the world’s first book written for people with the rare autoimmune disease, neurosarcoidosis. It is available as both a paperback and a PDF ebook from Lulu:

Paperback edition

PDF edition

The first part of the book contains medical information about neurosarcoidosis, diagnosis and treatment, as well as information on coping with the disease.

The second part of the book contains experience stories from ten patients from around the world.

The book is paperback, 176 pages long, and includes a glossary, bibliography and index. Fonts and layout have been designed to help readers with vision impairment. You can view a preview of the book on the Lulu page, look for the ‘Preview’ link just under the cover image.

The PDF ebook has an interactive table of contents and index, and external links to the websites mentioned in the book.

Review

Feb 24, 2015
I just finished 'The Patient’s Guide to NeuroSarcoidosis'. I want to thank Denise for writing such an informative book about neurosarc while putting into beautiful, concise words what patients and their families go thru. I also want to thank each patient who shared their personal experience with the disease. My husband was diagnosed with sarcoidosis in 2010, neurosarc was suspected but not confirmed until 2012. It has been quite a journey. This book would definitely be helpful for patients and loved ones who navigate the journey together. — Marty Wainwright (on Lulu)